2022 Boca Raton, Florida
    Chiari Awareness
    5k Run/1mi Walk
    1mi Fun Run (for children 8 and under)

    $0 Total Raised

    $20,000 Goal

    0 Donors

    0 Fundraisers

    Sign Up to Walk

    Sunday, 9/18/2022

    1mi WALK
    Sign Up by clicking the "Sign Up to Walk" button above
    Registration/Social Time: 8-8:45am
    Start Time: 9:00am

    5k RUN
    Sign Up for 5k Run here
    Registration: 6:45am
    Start Time: 7:30am

    1mi FUN RUN (8 years and under)
    Sign Up for 1mi Fun Run here
    Registration: 6:45am
    Start Time: 7:30am


    South County Regional Park

    MaryLou Berger Pavilion
    Sunset Cove Amphitheater
    20405 Amphitheater Circle
    Boca Raton, FL US 33498


    Noah Forman
    [email protected]
    (561) 289-1272

    Cathy Poznik (Bobby Jones CSF)
    [email protected]
    (330) 573-5560


    Boca Raton, FL Flyer (PDF)

    Boca Raton, FL Sponsorship Form (PDF)

    2022 Walk Recognition Prizes (PDF)


    Chiari, syringomyelia, Ehlers-Danlos Syndrome or a related disorder can make a person feel powerless. But what if you-- just YOU-- could be the one thing that makes their lives better? 

    YOU can be the hope for a better future!

    [email protected] is a collection of one-mile casual walks/runs and social events around the country that bring together people who are living with the devastating effects of Chiari malformation, syringomyelia, Ehlers-Danlos Syndrome and related disorders.

    Bring your awareness colors to the event.  You only need to walk/run as far and raise as much as you can. Every step, roll or crawl is a move in the right direction towards relief from pain for so many.

    We hope that with help from walkers like you, we will raise funds for educational, advocacy, awareness and research programs.

    Bring your colors to the event!

    Whether you are supporting awareness for Chiari malformation with purple, syringomyelia with blue, or Ehlers-Danlos Syndrome with zebra print, wear your colors to help us build awareness!

    Bobby Jones CSF Mission

    To advance knowledge through research and to educate the medical, allied sciences and lay community about Chiari malformation, syringomyelia and related disorders

    You have no teams at this time.

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