Katie was diagnosed 3 1/2 years ago with Unicentric Castleman Disease. Being one of the youngest children ever diagnosed has had its hardships with determining the best protocols for treatment. Over the last 3 1/2 years Katie has under gone a biopsy, 3 surgeries, 19 sedated MRI's or CT scans, endless ultrasounds and labs. For the last 24 months she has been on chemotherapy in both the IV and pill form and continues to remain symptomatic. We joined the CDCN over 3 years ago with the hope that together we can help find a cure. To date Team Katie has raised over $6,000 towards research. Our continued hope is that through raising awareness of this disease and fundraising, that 2017 will be Katie's year to find a treatment that works and one day a cure that allows her to have a 'normal' childhood. "Though she be but little, She is Fierce" ~William Shakespeare~
CDCN is a global initiative dedicated to accelerating research and treatment for Castleman disease. Physicians, researchers, patients and loved ones from around the world work together to cure this rare and deadly disease. To learn about the progress we've made, visit cdcn.org!