Health Hero Giving Day

 

Be a health hero! People impacted by life-altering health diagnoses need your help. By making a gift on Health Hero Giving Day, hosted by United Way of the Midlands and the Combined Health Agencies Drive on Feb. 24th, you can provide them with the hope and support they need to navigate difficult health challenges. Scroll down to learn more about the 21 participating CHAD health agencies and make your gift today!

United Way of the Midlands has been a proud partner of Combined Health Agencies Drive since 1987.

 

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Team
Muscular Dystrophy Association

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$1,500 Goal

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Agency Name: Muscular Dystrophy Association

Formed in: 1950

Why your gift is needed:

MDA is committed to transforming the lives of individuals with muscular dystrophy, ALS, and related neuromuscular diseases through innovations in science and innovations in care. MDA works tirelessly on behalf of the neuromuscular disease community. We’ve done so for 70 years. MDA is on the frontline protecting our community during the COVID-19 pandemic. Your support is needed now more than ever.

  • Over 1,400 children and adults in Nebraska and Southwest Iowa have been registered with MDA to receive services provided by MDA.
  • Muscular Dystrophy can affect people of all ages. Although some forms become apparent in infancy or childhood, others may not appear until middle age or later.
  • Individuals affected by any of the 43 neuromuscular diseases in MDA's program have access to a nationwide network of some 200 hospital-affiliated clinics and 40 ALS research and clinical care centers staffed by top health professionals.

What your gift will do:

  • $35 helps provide telehealth appointments at MDA Care Centers.
  • $50 helps connect MDA families with MDA-funded clinical trials.
  • $100 helps support MDA's Virtual Summer Camp program provided to thousands of children.
  • $250 helps provide COVID-19 educational training for MDA providers.
  • $500 helps fund vital research for a cure.

Agency Summary:

 For 70 years, the Muscular Dystrophy Association (MDA) has been committed to transforming the lives of people living with muscular dystrophy, ALS, and related neuromuscular diseases. We do this through innovations in science and innovations in care. As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion since our inception to accelerate the discovery of therapies and cures. Research we have supported is directly linked to life-changing therapies across multiple neuromuscular diseases. MDA's MOVR is the first and only data hub that aggregates clinical, genetic, and patient-reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation's top medical institutions. Our Resource Center serves the community with one-on-one specialized support, and we offer educational opportunities for families and healthcare providers by providing conferences, events, and materials. MDA Advocacy supports equal access for our community, and each year thousands of children and young adults learn vital life skills and gain independence at summer camp and through recreational programs, at no cost to families. During the COVID-19 pandemic, MDA continues to produce virtual events and programming to support our community when in-person events and activities are not possible. MDA’s COVID-19 guidelines and virtual events are posted at mda.org/COVID19. For more information, visit www.mda.org  

Learn more about us:

Website: https://www.mda.org/ 

Facebook: https://www.facebook.com/MDAOrg/ 

Instagram: https://www.instagram.com/mdaorg/ 

Youtube: https://www.youtube.com/user/MySpaceMDA 

Twitter: https://twitter.com/MDAorg 

LinkedIn: https://www.linkedin.com/company/muscular-dystrophy-association 

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