Health Hero Giving Day

 

Be a health hero! People impacted by life-altering health diagnoses need your help. By making a gift on Health Hero Giving Day, hosted by United Way of the Midlands and the Combined Health Agencies Drive on Feb. 24th, you can provide them with the hope and support they need to navigate difficult health challenges. Scroll down to learn more about the 21 participating CHAD health agencies and make your gift today!

United Way of the Midlands has been a proud partner of Combined Health Agencies Drive since 1987.

 

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National Hemophilia Foundation - Nebraska Chapter

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Agency Name: Nebraska Chapter of the National Hemophilia Foundation

Formed in: 1985

Why your gift is needed:

Nebraska Chapter of the National Hemophilia Foundation is dedicated to finding better treatments and cures for inheritable bleeding disorders and to preventing the complications of these disorders through education, advocacy and research. We support all individuals and families affected with inherited bleeding disorders like Hemophilia, Von Willebrand Disease and other rare factor disorders. Your support benefits the Nebraska bleeding disorders community by allowing us to advocate for the needs of the community locally and nationally with our elected officials and health organizations, provides education and support from birth on and supports research and innovation to find a cure.

  • Nearly 125 people in Nebraska have hemophilia. It's estimated that more than 10,000 people have some kind of bleeding disorder.
  • In Nebraska, there are 2,450 people affected by a bleeding disorder, including those affected, family members and caregivers.
  • 1 in 5,000 males is estimated to have hemophilia at birth.
  • Von Willebrand affects an estimated 1% of the population.

What your gift will do:

  • $10 can help procure supplies for a child to learn how to self infuse at educational events.
  • $25 provides one family a gas card to travel from a rural community to visit their Hematologist at the Omaha Hemophilia Treatment Center.
  • $100 helps support our Adults with Bleeding Disorder Conference focused on lifelong education and support.
  • $125 helps support Family Camp, where families participate in traditional camp activities, such as canoeing, hiking, archery, water slides, zip lines as well as an infusion clinic for youth with bleeding disorders, all with the supervision and guidance of trained nurses and staff. They also receive updated information about new trends in treatment and services for families impacted by bleeding disorders.
  • $250 covers the cost of attendance for one individual to our family education weekend.

Agency Summary:

  • Medical research: NHF funds a broad range of programs and projects addressing bleeding disorders.
  • Annual Family Education Weekend and Adults with Bleeding Disorders Education Day bring both education and fun for all ages.
  • Certified Hemophilia Treatment Center at UNMC and Children's Hospital provides comprehensive care.
  • Nebraska Chapter Financial Assistance Program exists to improve the quality of life of individuals and families affected by bleeding disorders.
  • Parent Information & Networking Group assists families of newly diagnosed children ages 0-12
  • Family camp brings those with bleeding disorders together for outdoor activities, connection and learning how to safely adventure while living with a bleeding disorder.
  • Social and networking opportunities connect people with bleeding disorders with others who understand.
  • Each year, the Nebraska Chapter of the National Hemophilia Foundation holds a State Advocacy Day. The day offers people with bleeding disorders, and their advocates, training on how to speak with legislators and an opportunity for individual visits with members of the state legislature.

Learn more about us:

Website: https://www.nebraskanhf.org/ 

Facebook: https://www.facebook.com/nebraskanhf 

Instagram: https://www.instagram.com/nebraskanhf1985/ 

Youtube: https://www.youtube.com/channel/UCmpEL00rJMNBB-F85yV2E_Q 

Twitter: https://twitter.com/hemophiliaNEB 

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