HELP US ENSURE THAT NO ONE WILL FACE AN EVER DARKENING WORLD FROM USHER SYNDROME TYPE 1F

    SIGHT.SOUND.CYCLE

    $275,000 RAISED

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    13 LOCATIONS

    1500 RIDERS

    We are back spinning for a cure for Usher 1F!

    Sight.Sound.Cycle @Home!

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    I'm fundraising for a cure for Usher 1F.

    Usher Syndrome is the leading cause of inherited deaf-blindness, and type 1 is the most severe. Children with Usher 1 are born profoundly deaf and progressively lose their sight. Cochlear implants can restore near normal hearing, but currently there is no treatment to prevent blindness from Usher 1F. Usher 1F Collaborative seeks to save and restore the vision of those with Usher 1F.

    We leverage the world’s best brains, current science, cutting-edge engineering and new technology to find a cure for this debilitating genetic disease. Our board has a world-renowned physician and scientist (also an Usher 1F parent), a biopharma venture capitalist, a drug developer, motivated parents and friends of affected families, and others in the corporate world. This winning combination allows us to access the best researchers and effectively understand and evaluate the science. 

    We are uniquely positioned with our exemplary combination of skillsets to attract and fund the best scientists to achieve our mission. Unlocking this genetic mystery will lead to other breakthroughs, uncovering cures for additional rare diseases overlooked by big pharma and academia. New paradigms will eliminate so much needless suffering.

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